This study is now closed. Thank you to all who completed the survey. The study results will be released at www.canaaf.org in the coming months. You can also sign-up for our mailing list to receive the results by email.
Study on the Burden of Disease in Alopecia Areata
Alopecia areata is an autoimmune disease that causes varying degree of hair loss. Though the hair loss in and of itself may not cause serious health issues, it can impact the quality of life of both patients and their caregivers because of its visibility.
We would like to fully understand the burden that alopecia areata has on patients and their caregivers. By identifying the burden and highlighting common issues, we hope to be able to optimize the care received by alopecia areata patients in order to better meet their needs.
The surveys are being conducted through the Canadian Alopecia Areata Foundation (CANAAF) and directed to anyone who is affected by alopecia areata or is the caregiver for a child with alopecia areata, please visit the website canaaf.org for more information and links to the surveys.
Your participation and completion of the survey is completely voluntary. You will not be paid or compensated for your time. We will however publish a summary of the results to be posted on the website and/or emailed to the membership.
Alopecia Areata Survey for Patients Ages 5-11
https://www.surveymonkey.com/r/CWPQ5FC
Alopecia Areata Survey for Patients Ages 12-17
https://www.surveymonkey.com/r/CSQGCX8
Alopecia Areata Survey for Patients Ages 18 and older
https://www.surveymonkey.com/r/CSXKZ7K
Alopecia Areata Survey for Caregivers of Children with Alopecia Areata
https://www.surveymonkey.com/r/CS3FBQ8
The Study Team
Dr. Cathryn Sibbald, MSc, MD, FRCPC, DABD
Staff Physician, Section of Dermatology, Department of Paediatrics, SickKids Hospital
Assistant Professor, University of Toronto
Dr. Elena Pope, MSc, MD, FRCPC
Professor of Paediatrics, University of Toronto
Section Head, Paediatric Dermatology, The Hospital for Sick Children
Dr. Nhung Ho, MD, FRCPC
Staff Physician, Section of Dermatology, Department of Paediatrics, SickKids Hospital
Assistant Professor, University of Toronto
Anthony Gilding, HBSc student
Director of Science & Research Communication
Canadian Alopecia Areata Foundation (CANAAF)
For questions or concerns about the study, feel free to contact the principal investigator at Cathryn.sibbald@mail.utoronto.ca
We thank you in advance for your participation in this national study!
This study has been approved by the University of Toronto Research Ethics Board.
